Sunday, October 30, 2022

Things are rolling along. I lost Penny to Cancer. But we got two lovely minature dachshunds and love them to pieces. Frank-the-Pug is still rolling right along - 15 years old! I am doing my final appeal for Social Security disability and expect it to not succeed. Not because I'm not actually disabled, but because the system is really f'd up.  Thank God I have private disability.


I have a lot more doctor appointments this year. I skipped nearly everything in person last year because of COVID. I have an impaired immune system. I have to be really careful. I discovered along the way that I am allergic to polyethelene glycol and polysorbate 80 - which are in all the vaccines. The anaphlaxis is getting worse over time so I am now not cleared for any vaccines at all. I did get evusheld (a covid vaccine for immune system impaired people) and had anaphlaxis but I figured, it was safer to do that than to try to treat covid (which has the same ingredients I am allergic to in the vaccine).


I did finally end up getting covid this month, but my immunology doctor prescribed steroids, a preventative inhaler with twice as much steroid medication as my normal one, and antibiotics. It did the trick. I'm mostly better now. Still having intermittant fevers and my asthma is still lively, but the worst is past.


Other than that, just putting one foot in front of the other, trying to keep my energy output low enough that I can recoup it overnight. 


I'm getting further evaluation for potential hearing loss & inflammatory problems next week. I'm working on setting up a craft room so I have my own space to do all the things, set up the way I need it so I am not unnecessarily wasting energy with set up & clean up.


I've set up a lot of goals for myself. I do better with a sense of purpose.


What are y'all up to?